Our members
Forward ME brings together a diverse group of UK organisations that share a commitment to improving the lives of people with ME. Each member contributes unique expertise.
This page provides an overview of all current members. By working together, these organisations are helping to drive forward meaningful and lasting change.
About membership
Forward ME is keen to bring together all national charities, national non-governmental organisations, campaigning groups in the UK that demonstrate commitment to improving the lives of people with ME. Any group who meet this criteria are welcome to apply join Forward ME. For more information on how to get involved or any questions on membership, don’t hesitate to get in touch.
#ThereForME
#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe Myalgic Encephalomyelitis (ME) /Long Covid. The campaign is supported by 24 organisations and smaller initiatives supporting people with ME/ and Long Covid.
#ThereForME is calling for an NHS that’s there for people with ME and Long Covid.
The 25% ME Group
The 25% ME Group is a nationwide charity. They campaign to raise awareness of ME and provide services to people affected by severe ME.
Action for ME
Action for ME provides support to people of all ages affected by ME. As an organisation providing direct support and working to secure long-term change, Action for ME are making an impact on multiple fronts – from amplifying the voices of people affected by ME in Government and leading on breakthrough research, to providing “lifeline” support and unique healthcare services on a daily basis.
BRAME (Blue Ribbon for Awareness of ME)
The primary aim of BRAME, both in the UK and worldwide, is to create an increased awareness and understanding that ME/CFS is a very real and debilitating illness, and the consequences of living with ME/CFS, for the sufferer, carer and the whole family unit. BRAME also offers support and understanding to those affected by ME/CFS.
Hope 4 ME & Fibro Northern Ireland
Hope 4 ME & Fibro are an all-volunteer, patient-led charity. They support the family members, medical and scientific experts: for people with Myalgic Encephalomyelitis (ME), Fibromyalgia, and Covid-induced ME. They provide free, CPD-certified information packs for healthcare professionals, students, and academics.
ME Association
The ME Association is a charity that is established to offer relief to persons of all ages with Myalgic Encephalopathy (M.E.)/Chronic Fatigue Syndrome (CFS) through the provision of information, to further education in all aspects of the illness, and to support research and to publish the useful results.
As well as lobbying for positive change, the ME Association funds research through the Ramsay Research Fund (RRF).
ME Research UK
| The principal aim of ME Research UK is to commission and fund high-quality scientific (biomedical) investigation into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (also known as ME/CFS). They also have a mission to Energise ME Research, which involves raising awareness of the need for biomedical research into ME/CFS globally. |
ME Local Groups Network UK
| ME Local Groups Network UK (MELN UK) aims to create a national network of local patient support groups across the UK. The Network provides support and connections between local groups and provides a platform for the grassroots voice to be heard, ensuring local issues can be raised at a national level. |
MESiG (ME Support in Glamorgan)
| MESiG supports those with M.E / C.F.S., Fibromyalgia or Lyme Disease. They are a local support group for anyone in the area, they arrange meet ups, help with form filling, organise talks. MESiG also advocates for people living with these conditions in Wales. |
Patient Advisory Group for the ME Research Collaborative (PAG)
| PAG support patient-centred biomedical research into ME, using its diverse voices of patients and carers to advise associated bodies and platforms. PAG were Co-Chairs of the Research Working Group for the Department of Health and Social Care’s ME/CFS Delivery Plan. |
Physios for ME
| Physios for ME is a group of physiotherapists in the United Kingdom with a special interest in Myalgic Encephalomyelitis (“ME”). They aim to research, educate and advocate to improve physiotherapy management for people with ME. |
Tymes Trust
| Tymes Trust is a national ME charity dedicated to children and young people with ME and their families. Their entire team work pro bono and in 2010 they received the Queen’s Golden Jubilee Award for Voluntary Service, for pursuing the educational rights and advancing the care of children with ME. |
Individuals
- Simon Chandler (Chair)
- Dr Nina Muirhead
- Dr Nigel Speight
- Dr William Weir