An interview with Carolyn Leary, the newly appointed chair of Forward ME. Interviewer – Karen Hargrave, co-founder of #ThereforME.

On World ME Day 2026 we send warm greetings to all those whose lives are impacted by ME (Myalgic Encephalomyelitis, also called Chronic Fatigue Syndrome, CFS). Forward ME is a body that brings together charities and campaigning bodies in the UK working to improve research and services. We also contribute to the global efforts through…

Following on from the NHS England Delay Planning Services for Very Severe ME/CFS Forward ME have taken action. Forward ME have created a discussion document on shaping a service for those very severely affected. This document is intended to open up discussion with the Department of Health and Social Care (DHSC) about the key elements…

Forward ME are members of the post-publication engagement group working to implement the actions from the ME/CFS Delivery Plan. This group is run by the Department for Health and Social Care (DHSC). This update concerns the below action from the ME/CFS Delivery Plan: “DHSC, with NHS England, will explore whether a specialised service should be…

As part of the AGM, Forward-ME invited Tahlia Ruschioni from the Bateman Horne Center to present their new Clinical Care Guide (First Edition 2025).  Tahlia Ruschioni is a healthcare leader with more than 20 years of experience spanning bedside care, systems-level advocacy, and medical education, currently serving as Executive Director of the Bateman Horne Center…

In March, Forward ME held its Annual General Meeting on 5th March 2026 — open to all — marking an important milestone in the organisation’s development. Members adopted a new Mission and Values document, which includes updated governance information, and elected a new team of officers to lead the organisation through the year ahead. Newly…