Today is Severe ME Day. For most people, it is a day to raise awareness. But for those living with severe and very severe ME, today is simply another day like yesterday or tomorrow. Another day of living in darkened rooms, enduring relentless symptoms, depending on others for the most basic needs, and facing a…

We’re excited to announce our new patron – Baroness Lowe of Armley. A few words Baroness Lowe wanted to share with you:Today marks Severe ME Day—a time to recognise the thousands of people missing from our communities due to severe myalgic encephalomyelitis. People living with severe ME spend years, decades and lifetimes confined to bed…

This Forward ME briefing paper on the clinical assessment of people with very severe ME/CFS was prepared for the DHSC and NHS England in relation to an action point in the DHSC Delivery Plan to explore the creation of a national specialist referral service for people with very severe ME/CFS who require hospital admission. The…

Forward ME would like to congratulate the ME Association’s Healthcare 4 ME (H4ME) team for their achievement in getting a SNOMED CT Code for Very Severe ME added. What a great achievement! For more information, you can read the ME Association’s press release:

An interview with Carolyn Leary, the newly appointed chair of Forward ME. Interviewer – Karen Hargrave, co-founder of #ThereforME.

On World ME Day 2026 we send warm greetings to all those whose lives are impacted by ME (Myalgic Encephalomyelitis, also called Chronic Fatigue Syndrome, CFS). Forward ME is a body that brings together charities and campaigning bodies in the UK working to improve research and services. We also contribute to the global efforts through…