Updates
The latest updates, activity, and policy work from our coalition.
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World ME Day Statement
On World ME Day 2026 we send warm greetings to all those whose lives are impacted by ME (Myalgic Encephalomyelitis, also called Chronic Fatigue Syndrome, CFS). Forward ME is a body that brings together charities and campaigning bodies in the UK working to improve research and services. We also contribute to the global efforts through…
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‘Do no harm’ published in physiotherapy Frontline magazine
Congratulations to Dr Nikki Clague-Baker and Physios for ME for the paper ‘Do no harm: supporting people with ME/CFS’ being published by the Chartered Society of Physiotherapy. Nikki Clague- Baker wrote: “It took 7 years but we have managed to publish an article in the physiotherapy Frontline magazine ‘Do no harm’. Thank you to the…
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Shaping a service for those with very severe ME/CFS
Following on from the NHS England Delay Planning Services for Very Severe ME/CFS Forward ME have taken action. Forward ME have created a discussion document on shaping a service for those very severely affected. This document is intended to open up discussion with the Department of Health and Social Care (DHSC) about the key elements…
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Supporting Children and Young People With Medical Conditions and Allergy
Forward ME welcomes the explicit recognition of children and young people with ME/CFS, at all levels of illness severity, in the draft consultation on supporting children and young people with medical conditions and allergy. ME/CFS, alongside Long Covid, is the leading cause of medically‑related persistent and prolonged school absence, and a major driver of long‑term…
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NHS England Delay Planning Services for Very Severe ME/CFS
Forward ME are members of the post-publication engagement group working to implement the actions from the ME/CFS Delivery Plan. This group is run by the Department for Health and Social Care (DHSC). This update concerns the below action from the ME/CFS Delivery Plan: “DHSC, with NHS England, will explore whether a specialised service should be…
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Talk by Bateman Horne Center
As part of the AGM, Forward-ME invited Tahlia Ruschioni from the Bateman Horne Center to present their new Clinical Care Guide (First Edition 2025). Tahlia Ruschioni is a healthcare leader with more than 20 years of experience spanning bedside care, systems-level advocacy, and medical education, currently serving as Executive Director of the Bateman Horne Center…